In January, I was...

In January, I was blissfully unaware that my husband would be diagnosed with a life threatening disease. In April we found out that he has HAE, or Hereditary Angioedema. It is a disease that causes swelling in the limbs, face and airway. Death can result from a quick throat swelling.

Among all of the heartaches that have come from this disease, we have had many blessings as well. All of the financial aspects that you might think go along with a disease like this have been taken care of. We have a company called PSI who is taking care of paying the premiums for his insurance and his copays. All of that and paying for his medication and his treatments.

The treatments are as follows: twice a week I have to inject his port with an infusion of this medicine called Cinryze. I am not a nurse by any means. I absolutely hate sticking that needle in. Ugh. It seems to be my worst nightmare ever.

Now on to another blessing I left out. HAEA (the association for HAE) has paid for us to go to Las Vegas this weekend... all expenses paid. I am currently packing, and we leave in the morning. I would write all about it when I return, but it seems what happens in Vegas stays there.... Unless I win some money, that's coming home with me.